Sponsorships
We support a range of activities that help enhance the lives of people living with rare disease.
Advocacy organizations play a critical role in rare disease communities. Nonprofit foundations raise awareness, educate and support families, advance medical and scientific knowledge, and advocate for legislative and regulatory change. Through our sponsorships, we help strengthen this work and support programs and events that improve the lives of people living with rare diseases. Our funding focuses on four key areas:
- Disease Awareness and Education
- Quality of Care
- Social and Emotional Wellbeing
- Medical and Scientific Advancement
Interested in applying for funding?
The Process Starts with 3 Steps
Send us an email to let us know you’re seeking support for an initiative, program, event or other activity.
We will set up a phone call with you to learn more about your organization and your request.
Eligible applicants will receive an application and checklist of documents that must be submitted.
Before you reach out via email to set up a call, please note: We are typically not able to support:
- Organizations that do not have 501(c)(3) status
- Programs that are primarily for entertainment or other social activities
- Programs where ITF Therapeutics would be the sole commercial contributor
- Initiatives or activities that have already occurred
- Covering expenses related to the ordinary course of business, including salaries or operating expenses
- Funding that would be directly provided to individuals
We are grateful for the time and care applicants put into their proposals. While we review every submission thoughtfully, not all proposals will be selected for funding.
Sponsorship Highlights
From adaptive sports to mental health support to family workshops, we sponsor a variety of programs and events to support the rare disease community. Here is a sampling of initiatives we have sponosored:
Volt Hockey
As the Official Sponsor of the US Volt Hockey Summer Training Camp, we are thrilled to help this budding sport expand across the country. Combining elements of go-karting and hockey, volt hockey is a fast-paced, exhilarating game designed for athletes with limited upper and lower body mobility. It’s not only fun, but peer-reviewed research has demonstrated that participating in power wheelchair team sports like volt hockey provides measurable mental, emotional, and physical benefits for athletes with disabilities.
Best Day Ever Foundation
The Best Day Ever Foundation was started by a mom whose passion is to help Duchenne-affected families “just live…one best day ever at a time.” The organization hosts an array of events designed to support and educate families including art classes, nutrition events, resource fairs, and Zoom meetings for newly diagnosed families. To learn more, visit the Best Day Ever Foundation website.
Duchenne Today: Inside the Experience
The steering committee of The Duchenne Program at UMass Chan Medical School convened a community conversation bringing together individuals affected by Duchenne to share their perspectives on key issues. Participants shared powerful firsthand stories, highlighting challenges such as gaps in adult care, the complexity of treatment decision-making, and the burden of clinical trial participation. By centering the voices of those living with Duchenne every day, the conversation helped ensure that the experiences of patients, family members, and caregivers remain central as stakeholders work to improve life for families impacted by Duchenne.
